Returning Individual Research Results to Participants Book [PDF] Download

Download the fantastic book titled Returning Individual Research Results to Participants written by National Academies of Sciences, Engineering, and Medicine, available in its entirety in both PDF and EPUB formats for online reading. This page includes a concise summary, a preview of the book cover, and detailed information about "Returning Individual Research Results to Participants", which was released on 23 September 2018. We suggest perusing the summary before initiating your download. This book is a top selection for enthusiasts of the Medical genre.

Summary of Returning Individual Research Results to Participants by National Academies of Sciences, Engineering, and Medicine PDF

When is it appropriate to return individual research results to participants? The immense interest in this question has been fostered by the growing movement toward greater transparency and participant engagement in the research enterprise. Yet, the risks of returning individual research resultsâ€"such as results with unknown validityâ€"and the associated burdens on the research enterprise are competing considerations. Returning Individual Research Results to Participants reviews the current evidence on the benefits, harms, and costs of returning individual research results, while also considering the ethical, social, operational, and regulatory aspects of the practice. This report includes 12 recommendations directed to various stakeholdersâ€"investigators, sponsors, research institutions, institutional review boards (IRBs), regulators, and participantsâ€"and are designed to help (1) support decision making regarding the return of results on a study-by-study basis, (2) promote high-quality individual research results, (3) foster participant understanding of individual research results, and (4) revise and harmonize current regulations.


Detail About Returning Individual Research Results to Participants PDF

  • Author : National Academies of Sciences, Engineering, and Medicine
  • Publisher : National Academies Press
  • Genre : Medical
  • Total Pages : 399 pages
  • ISBN : 0309475171
  • PDF File Size : 15,8 Mb
  • Language : English
  • Rating : 4/5 from 21 reviews

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Returning Individual Research Results to Participants

Returning Individual Research Results to Participants
  • Publisher : National Academies Press
  • File Size : 38,7 Mb
  • Release Date : 23 September 2018
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When is it appropriate to return individual research results to participants? The immense interest in this question has been fostered by the growing movement toward greater transparency and participant engagement

Returning Individual Research Results to Participants

Returning Individual Research Results to Participants
  • Publisher : Unknown Publisher
  • File Size : 43,9 Mb
  • Release Date : 21 May 2024
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"There is a long-standing tension in biomedical research arising from a conflict in core values--the desire to respect the interests and desires of research participants by communicating results contrasted with

Returning Individual Research Results to Participants

Returning Individual Research Results to Participants
  • Publisher : National Academies Press
  • File Size : 51,9 Mb
  • Release Date : 23 August 2018
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When is it appropriate to return individual research results to participants? The immense interest in this question has been fostered by the growing movement toward greater transparency and participant engagement

Sharing Clinical Trial Data

Sharing Clinical Trial Data
  • Publisher : National Academies Press
  • File Size : 27,6 Mb
  • Release Date : 20 April 2015
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Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of

Responsible Research

Responsible Research
  • Publisher : National Academies Press
  • File Size : 35,5 Mb
  • Release Date : 06 February 2003
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When 18-year-old Jesse Gelsinger died in a gene transfer study at the University of Pennsylvania, the national spotlight focused on the procedures used to ensure research participants' safety and their

Informed Consent and Health Literacy

Informed Consent and Health Literacy
  • Publisher : National Academies Press
  • File Size : 36,7 Mb
  • Release Date : 04 March 2015
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Informed consent - the process of communication between a patient or research subject and a physician or researcher that results in the explicit agreement to undergo a specific medical intervention

Small Clinical Trials

Small Clinical Trials
  • Publisher : National Academies Press
  • File Size : 54,7 Mb
  • Release Date : 01 January 2001
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Clinical trials are used to elucidate the most appropriate preventive, diagnostic, or treatment options for individuals with a given medical condition. Perhaps the most essential feature of a clinical trial

Fostering Integrity in Research

Fostering Integrity in Research
  • Publisher : National Academies Press
  • File Size : 36,6 Mb
  • Release Date : 13 January 2018
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The integrity of knowledge that emerges from research is based on individual and collective adherence to core values of objectivity, honesty, openness, fairness, accountability, and stewardship. Integrity in science means

Contemporary Issues for Protecting Patients in Cancer Research

Contemporary Issues for Protecting Patients in Cancer Research
  • Publisher : Unknown Publisher
  • File Size : 47,8 Mb
  • Release Date : 21 May 2024
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In the nearly 40 years since implementation of federal regulations governing the protection of human participants in research, the number of clinical studies has grown exponentially. These studies have become more

Ethical Conduct of Clinical Research Involving Children

Ethical Conduct of Clinical Research Involving Children
  • Publisher : National Academies Press
  • File Size : 31,8 Mb
  • Release Date : 09 July 2004
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In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly